It has been a few months since I wrote anything but now feel I am in a better place. The Avonex didn’t agree so I went to see the nurse and was offered tecfidera or dimethyl fumerate and was warned that I would probably be vomiting for a month until I got used to it. Summer holidays were upon me and we were going to be getting a puppy due to be available to us when the boys returned to school in September. So there was no best time to start the drug and I decided to just go for it and began taking it on a Tuesday. The first week on the lowest dose was fine then the idea is to increase it to 240mg twice a day in the second week, maybe this would be when the worse of the side effects would hit…up went the dose and crossed went my fingers waiting for the predicted horrendousness to start…..nothing….fine….no problems…except a bit of facial flushing but being fair I tend to go red anyway. A few months in and I am tolerating it really well. So pleased…and then…I discovered that when i try to get to sleep my legs start jerking so the neurologist has decided to swap the gabapentin to epilim which will take another period of adjustment. It seems that there is always something with ms if it isn’t the disease it is the drug side effects.
Physically the effects are slowly depleting my strength I can manage a mile on the treadmill but have to hold on for dear life! Running has therefore still come to an end. I find that going on the exercise bike is easiest as there are five points of contact attachment to the machine 2 hands, 2 feet and my backside! Walking is kind of ok but have recently found that if I walk with a group I feel like I am walking really fast but am soon lagging behind.
We got our lovely new puppy, Lily, a black Labrador and she is already too strong for me so Rob is taking on the training. I miss Beamish who had slowed down in his dotage to my newly acquired and dwindling rate. Lily is full of energy and bounce and she is a great pal for Rob who will soon be taking her everywhere with him.
The changes in the house are taking shape nicely too with more room for the boys and more light for me with the addition of a full glass conservatory.
Mentally I am noticing changes too, I forget everything I now find it is necessary to set an alarm or I forget my pills. It is increasingly more difficult to remember plot lines in books and on the television. I am still full of hope that the tecfidera will do something soon,people say I am looking a bit better so that is good.
Positive thought: take your time