A new addition to the fridge

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The Avonex arrived today, this drug is once weekly injectable. I will be trained to do it myself on 16th April. I do not know how I will summon the strength to do it but today I can hardly see and I keep telling myself it might make things better or at least they won’t get worse…..maybe….also the headaches, the pain! The neurologist will see me on Tuesday to see if there is a bigger gun he can hit it with.

I have been in contact with some amazing people all around the world since the start of this journey and a lovely lady from South Africa messaged me last night to reassure me about the betainterferons but also used a great phrase that “they start a civil war in your body!” Forewarned is forearmed in my book so I am psyching myself up for it. It is just so strange, this house feels a bit hospital like with the sharps bin and medical cool box and thousands of leaflets and information about Avonex. No wonder the drugs industry is big money.

I have had some bits of really good news, one of the Okehampton Physiotherapists is training in Spinal Touch and I have been put forward for a case study as it is really beneficial to people with MS. I have had it before so shouldn’t get a reaction like I did from the acupuncture! Also I took my boys to a cycling class yesterday and today and the 2 eldest can now ride bikes and the littlest one is nearly there. It made me a very happy, proud mummy to see them whizzing along feeling the wind on their faces as it clicked of how to balance, pedal and steer all at the same time.

I am amazed at how fast I have arrived at this point, I wish it was like riding a bike and I could put the brakes on.

positive thought: keep cool

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7 thoughts on “A new addition to the fridge

  1. You know, I’m an old pro at stabbing myself (being diabetic) and I’ve been on my interferon injections since the end of December, 3x a week, and I still cringe thinking about taking them. Everyone is clearly very different, so I won’t offer advice, I’ll just tell you what I do – I take a deep breath, inject as I let out the breath (old trick I remembered from getting different piercings), and know that even when there’s pain, it’s only about 2-3 seconds worth, and then it’ll be over. (I think I’m really just trying to fool myself – sometimes it works, sometimes it doesn’t.) However, I wish you a great deal of luck!!! 😀

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    1. Good advice. I think I am going to have to get my husband to do it at first although not sure if I might want to do it to have control. As the Avonex is into the thigh muscle I am worried it will affect my “only just still managing to do” running!

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      1. Ahhh… I do have my husband help me with the ones I do in the hip (upper butt) but I do the thigh and arm ones myself. I’m not sure about your meds specifically, but the injections I do in my thigh don’t interfere with function… even when I sometimes hit a spot that seems to be more sore than other spots. I hope it doesn’t affect your running! 🙂

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    1. It’s so strange isn’t it? Is it the side effects that are bothering you? For me, I have a big worry about if there is hair loss as thought I would end up bald! But apparently it’s not that dramatic! Good luck with ampyra I hope it suits you.

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  2. My fridge used to look like that, I was on Avonex for ten months. 🙂
    I think you’ll get used to having needle containers around and injecting yourself. And don’t worry about the leg and being able to run, you won’t feel anything weird. I used to have dance classes and it never affected those.
    I wish you the best of luck with Avonex and that it may help improve and manage your symptoms with the minimum side effects. 🙂

    Liked by 1 person

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