The Avonex arrived today, this drug is once weekly injectable. I will be trained to do it myself on 16th April. I do not know how I will summon the strength to do it but today I can hardly see and I keep telling myself it might make things better or at least they won’t get worse…..maybe….also the headaches, the pain! The neurologist will see me on Tuesday to see if there is a bigger gun he can hit it with.
I have been in contact with some amazing people all around the world since the start of this journey and a lovely lady from South Africa messaged me last night to reassure me about the betainterferons but also used a great phrase that “they start a civil war in your body!” Forewarned is forearmed in my book so I am psyching myself up for it. It is just so strange, this house feels a bit hospital like with the sharps bin and medical cool box and thousands of leaflets and information about Avonex. No wonder the drugs industry is big money.
I have had some bits of really good news, one of the Okehampton Physiotherapists is training in Spinal Touch and I have been put forward for a case study as it is really beneficial to people with MS. I have had it before so shouldn’t get a reaction like I did from the acupuncture! Also I took my boys to a cycling class yesterday and today and the 2 eldest can now ride bikes and the littlest one is nearly there. It made me a very happy, proud mummy to see them whizzing along feeling the wind on their faces as it clicked of how to balance, pedal and steer all at the same time.
I am amazed at how fast I have arrived at this point, I wish it was like riding a bike and I could put the brakes on.
positive thought: keep cool